The psychological aspects of parents who take care of children with chronic illnesses: A Review of the literature

Maria Ververidou 1, Nikoleta Petarouda 1, Alexandra Vaina 1 and Pantelis Perdikaris 2, *

1 Department of the Nursing, University of Peloponnese, 28 Erythrou Stavrou and Karyotaki Str, 22131, Tripolis, Greece.
2 Department of Nursing, School of Health Sciences, University of Peloponnese, 28 Erythrou Stavrou and Karyotaki Str, 22131, Tripolis, Greece.
 
Review Article
World Journal of Advanced Research and Reviews, 2023, 19(02), 1136–1176
Article DOI: 10.30574/wjarr.2023.19.2.1612
 
Publication history: 
Received on 30 June 2023; revised on 10 August 2023; accepted on 13 August 2023
 
Abstract: 
Introduction: Nowadays, chronic diseases in children are constantly increasing. Parents have a crucial role in taking care of their children as they are responsible to fulfill their needs. This situation aggravates their psychological state.
Purpose: To study the psychological effects of parents who take care of children-adolescents with chronic diseases which don’t belong to the category of rare diseases or psychiatric disorders.
Methods: This literature review was conducted with data retrieved from two electronic databases, "Pubmed" and "Google Scholar". The research lasted from December 2021 to September 2022.
Results: For this literature review 1433 studies were retrieved while after further analysis 32 studies were used. As a result, parents of children with chronic illness experienced the feeling of anxiety, fear, depression and emotional burden, affecting their quality of life to a large extent.
Conclusions: Families caring for a child with a chronic disease were characterized by a burdened psychological state and a low quality of life, which was influenced by socio-demographic, economic and psychological factors. It was deemed necessary to provide more effective support to these families as well as to develop tools for the treatment of chronic disease.
 
Keywords: 
Psychological effects; Caring parents; Children with chronic illness; Psychological effects; Chronic illness; Childhood cancer; Parents; Diabetes; Asthma; Children; Parental anxiety; Adolescents; Disability; Renal failure; Pandemic; Covid-19
 
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